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MEJ Thrombocythaemia - Internet forum dedicated to Thrombocythemia
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2007 Thrombocythaemia Forum Archive
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Where is the evidence?
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Re: Where is the evidence?
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Jacqui Ann
Re: Where is the evidence?
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Sep 13 07 10:21 AM
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Hi
I was on hu and came off it because it made me ill.
My count went straight back to what it had been before. I cannot say my count was much higher as I can fluctuate between1200-800.
I know that h kills cells it does not switch off the gene that causes the increase of platelet production.
I know once you finish on H its gone in 24 hours and your production of platelets will go back to what they were.
I had to start all over again with A and my last count is 395 so I'm borderline normal!!! (A first I assure you)
Can I ask why you want to know, are you thinking of coming off the drugs you are on ?
This idea that your platelets will go sky rocket is difficult to answer there may be other factors involved such as how long you have been on the drug. I guess thats the worse part to this, as we are on a trail the future is hazy for us all. Im not doing well and I m not sure that I want to feel this way for 5-10 years.
Hope I helped a little
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MEJ Thrombocythaemia - Internet forum dedicated to Thrombocythemia
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2007 Thrombocythaemia Forum Archive
>
Where is the evidence?
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