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May 21 09 8:23 PM
I've been on the HU since January. I will never forget how difficult it was to swallow that first capsule. It is just something no one ever wants to start putting in their body. I have had very little side affects. Early on, I was tired. But now I have no affects from it. My platelets moved down quite abit on 500 mgs a day...but not enough. I now take 500 four days a week and 1000 three days a week. I get bloodwork tomorrow to see if this amount is still adequate.
Good news, Sammy!
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Jun 13 09 4:00 AM
It's puzzling how some doctors think waiting until your platelets are 1,500,000 before putting you on medication is appropriate and others feel that you should go on medication at the one million count. Mimi, sorry that you have had to go on HU, but hopefully it will only be temporary until your platelets come down to an acceptable range. My counts have been in the high 800,000 range the past couple of visits. I mentioned to my doctor this week that medication wouldn't be considered (would it) unless my count went as high as 1,500,000, but he said no. That we would need to consider it if they went over a million. I keep hoping they'll stay below that mark! Good luck on the HU, Mimi. Sharon (in Georgia)
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Jun 14 09 8:16 PM