Hi,
I have been reading some posts here and am glad to find other people with ET as well. I was diagnosed in September 2008. In July I had what seemed like stroke like symptoms and went to emergency. They did all the tests and told me I had migraine aura, which made my vision really strange. But they also found that my platelet count was up to 920. The doctor ordered a bone marrow biopsy. The count was 1028 when they did the biopsy in August. September I seen the hematologist and he told me I have ET. They had started me on aspirin in July at emergency. After I had been to the hematologist, I went to see my doctor because of the pain in my hips and lower back. X-rays were taken and he told me I have arthritis. We spent the winter in the south and my platelet counts there were 1002 and 980. In April back at home again my count was 1239 and yesterday 1245. The last two were about 5 weeks apart. I struggle with pain/pressure in my head. It often feels like I am laying on a rock instead of a pillow. And I do have a very soft pillow because of this problem. I have pain in my joints and my legs, and tire easily. I don't know if all this is associated with the ET or what, sometimes I feel at such a loss. My GP says it is and the hematologist says it isn't. He says we wait until my count is up to 1500 before he does anything. I read on the internet about some natural remedies. Has anyone tried them? Bromarex, Thrombotab, Mobcitin? I am kind of groping around in the dark and would like some feedback, please.
Pauline
I have been reading some posts here and am glad to find other people with ET as well. I was diagnosed in September 2008. In July I had what seemed like stroke like symptoms and went to emergency. They did all the tests and told me I had migraine aura, which made my vision really strange. But they also found that my platelet count was up to 920. The doctor ordered a bone marrow biopsy. The count was 1028 when they did the biopsy in August. September I seen the hematologist and he told me I have ET. They had started me on aspirin in July at emergency. After I had been to the hematologist, I went to see my doctor because of the pain in my hips and lower back. X-rays were taken and he told me I have arthritis. We spent the winter in the south and my platelet counts there were 1002 and 980. In April back at home again my count was 1239 and yesterday 1245. The last two were about 5 weeks apart. I struggle with pain/pressure in my head. It often feels like I am laying on a rock instead of a pillow. And I do have a very soft pillow because of this problem. I have pain in my joints and my legs, and tire easily. I don't know if all this is associated with the ET or what, sometimes I feel at such a loss. My GP says it is and the hematologist says it isn't. He says we wait until my count is up to 1500 before he does anything. I read on the internet about some natural remedies. Has anyone tried them? Bromarex, Thrombotab, Mobcitin? I am kind of groping around in the dark and would like some feedback, please.
Pauline
